It’s been a long 6 weeks since my surgery, but things are
getting better. I’m sure now that summer
is here the time will start flying again.
I went and saw my doctor yesterday and he says everything looks
good. Now we just wait and see if my old
(not nice) friend endo comes back. He
said if it does he would like to try progesterone to treat it. Anyone ever treated their endo with
progesterone? I should probably go look up
some endo blogs. I’m sure I can find someone talking about it somewhere out
here in blog world. My other doctors
have only tried to treat it with birth control.
I have been on birth control since we stopped fertility treatments a
year and a half ago. I’m going off the
pill again. It was 8 ½ years ago when I
went off the pill when we decided to start ttc.
The feelings are so different this time.
Back then it was so exciting and frightening to think we were taking the
next step in our lives by having a child.
Now I just feel dread that my endo will come back and I will have to
start all over with the pain. I’m trying
to think positive and hope that endo will not be back to terrorize my insides
again, but it’s easier to just expect that it will be back.
Thanks to all my friends that left me the supportive
comments on my last post. It’s so nice
to know that I am not alone with feeling certain ways. I promise I will be stronger! I think I must revert back to living life one
day at a time. Living in the short term
right now feels easier.
i dont have endo.
ReplyDeleteI have... wait for it...
ankylosing Spondylitis (AS)... you can copy and paste that in a google search. when i tell people in person they ask me to repeat it..
anyways... i am unable to take NSAIDS cause they hurt my stomach and i end up in emerg.. but I have discovered awsome opiad! i feel like a pusher. but two meds that have made my life bearable over the past 14 years... toradol (odly an nsaid, but it no longer works for me) My neices who had horrible PMS issues got onto it after i offered them to try my Rx since i had it for "unexplained pain" in my right arm and leg. is now explained by AS. the other is Tramacet. Its a bit drowsy the first time you take it but its nice. Its mild enough to not be nearly as adictive as Codein or Oxy but its got enough kick to deal with HORRIBLE pain. as one experiences from time to time with Endo. Wish you all the best. Ginger is an awsome anti new inflamation , as is CUmin (tumeric) if you can .. take with food to avoid stomach burn.
All the best. Dear sister in sorrow.
Certainlydifferent,
DeleteI do know of your disease! My dad got AS in his early 20's and he is the only other person I know that has this. I have watched him suffer with this my whole life. We will have to talk more of this. I'm sorry you have this, it is a terrible disease.
hi,
ReplyDeleteI am keeping my fingers crossed that your old (not nice) friend never comes back!
Until you feel stronger, living life one day at a time is a good tactic, it works for me.
hugs!
I hope your endo will not come againnnnnnnn...here's to a lovely summer! :-)
ReplyDeleteNever heard of progesterone for endo--but a friend of mine was put into "menopause" with a drug I can't remember! ACK-Like you they had stopped TTC but just wanted the endo to end (no pun). Good luck!!!
ReplyDeleteI'm no help here.... Hadn't experienced endo; thro I did have my uterus removed in February.
ReplyDeleteWhat I do know of some friends who have endo, most of 'em doing good, with holistic care (like yoga, herbs, gluten-free food, mediation, etc). I suspect it's more spiritual and mindfulness that help them become aware of their own bodies' needs. Hopefully your summer will be great without the old friend poking its head in!
Hi! I have endo, too. And to answer your question, yes, I have tried Progesterone for it. It did help the pain a bit at high does (4oo mg 2x/day), but the side effects (weight gain, headaches, spotting) were unpleasant, so I stopped. What I have found that helps significantly is a supplement called DIM (Diindolylmethane). It helps to metabolize estrogen. My acupuncturist recommended I try it. Much to my surprise, the pain is much better. I recently found out that another friend of mine uses it too... she had a hysterectomy several years ago and the DIM has kept the endo from coming back. Hope that helps!
ReplyDeleteThanks for the info. I have been reading about the progesterone side effects (not very happy about that). I haven't heard of DIM. I will definitely look it up.
Delete